---
title: Rare Disease Key Facts
description: In support of Rare Disease Day, we’re raising awareness about rare diseases and their impact on patients’ lives. There is a growing need to increase patient options for patients living with rare diseases. Check out these key facts about rare diseases and the state of clinical research progress.
image: https://blog.advancedclinical.com/hubfs/Blog%20Feature%20Images/key-facts.jpg
---

[![Advanced Clinical Blog](https://blog.advancedclinical.com/hubfs/advanced-clinical-blog-logo-1.svg "Advanced Clinical Blog")](https://blog.advancedclinical.com/)

- [Blog Home](https://blog.advancedclinical.com/)
- [Contact Us](https://www.advancedclinical.com/contact/)
- |
- [BACK TO ADVANCEDCLINICAL.COM](https://www.advancedclinical.com/)

# A clear and bold header

[Therapeutic Insights](https://blog.advancedclinical.com/topic/therapeutic-insights)

# Rare Disease Key Facts

 By [Lizzie Evans](https://blog.advancedclinical.com/author/lizzie-evans) on February, 27 2017

- [All](https://blog.advancedclinical.com)
- [Clinical Research / Monitoring](https://blog.advancedclinical.com/topic/clinical-research-monitoring)
- [Clinical Staffing](https://blog.advancedclinical.com/topic/clinical-staffing)
- [Talent/Career Tips](https://blog.advancedclinical.com/topic/talent-career-tips)
- [Technology Insights](https://blog.advancedclinical.com/topic/technology-insights)
- [Patient Recruitment and Retention](https://blog.advancedclinical.com/topic/patient-recruitment-and-retention)
- [Quality & Validation](https://blog.advancedclinical.com/topic/quality-validation)
- [Data Management](https://blog.advancedclinical.com/topic/data-management)
- [Therapeutic Insights](https://blog.advancedclinical.com/topic/therapeutic-insights)
- [Clinical Project Management](https://blog.advancedclinical.com/topic/clinical-project-management)
- [Diversity & Inclusion](https://blog.advancedclinical.com/topic/diversity-inclusion)
- [Patient Engagement](https://blog.advancedclinical.com/topic/patient-engagement)
- [Gender Parity](https://blog.advancedclinical.com/topic/gender-parity)
- [Medical Writing](https://blog.advancedclinical.com/topic/medical-writing)
- [Safety](https://blog.advancedclinical.com/topic/safety)

### Topics

- Browse Our Blog Topics

### Subscribe Here!

##### Search The Blog

[Back to main Blog](https://blog.advancedclinical.com)

###### Lizzie Evans

In support of Rare Disease Day, we’re raising awareness about rare diseases and their impact on patients’ lives.

There's a growing need to increase treatment options for patients living with rare diseases. Check out these key facts about rare diseases and the state of clinical research progress.

 

**Rare Disease Facts:**

![Rare Disease Blog Graphic.jpg](https://blog.advancedclinical.com/hs-fs/hubfs/AC_Blog/Rare%20Disease%20Blog%20Graphic.jpg?width=1110&height=395&name=Rare%20Disease%20Blog%20Graphic.jpg)**More About Rare Diseases:**

- Almost **7,000** rare diseases affect < **200,000** people in the United States
- Rare diseases may involve chronic illness, disability, and often premature death
- Rare diseases are complex, and since the majority of these diseases have inadequate or no treatment options, they represent a disproportionate share of health care spending
- Patients with rare diseases are frequently misdiagnosed or are undiagnosed

You can help raise awareness about rare diseases by attending an [event](http://www.rarediseaseday.org/events/world), [sharing your personal story](http://www.rarediseaseday.org/tell-your-story), and sharing this article using the buttons above!

(Source: [NIH](https://report.nih.gov/NIHfactsheets/ViewFactSheet.aspx?csid=126))

<http://www.linkedin.com/in/LizzieSEvans> <https://www.twitter.com/LizzieSEvans>

[Previous Post](https://blog.advancedclinical.com/relationships-are-complicated.-partnerships-dont-have-to-be)

[Next Post](https://blog.advancedclinical.com/this-common-quality-mistake-is-also-the-most-avoidable-one)

### Stay up to date

© 2026 Advanced Clinical. All Rights Reserved

<https://www.linkedin.com/company/advanced-clinical/> <https://twitter.com/advclinical> <https://www.facebook.com/AdvClinical> <https://www.instagram.com/advancedclinical/>

[Terms & Conditions](http://www.advancedclinical.com/privacy-policy)

|

[Privacy Policy](http://www.advancedclinical.com/privacy-policy)

|

[Contact Us](http://www.advancedclinical.com/privacy-policy)

© 2026 Advanced Clinical. All Rights Reserved

<https://www.linkedin.com/company/advanced-clinical/> <https://www.youtube.com/channel/UCdyH6rBtfbt-xBYNyBHZjUA> <https://twitter.com/advclinical> <https://www.facebook.com/AdvClinical> <https://www.instagram.com/advancedclinical/>

[Terms & Conditions](http://www.advancedclinical.com/privacy-policy) [Privacy Policy](http://www.advancedclinical.com/privacy-policy) [Contact Us](http://www.advancedclinical.com/privacy-policy)