In support of Rare Disease Day, we’re raising awareness about rare diseases and their impact on patients’ lives.
There's a growing need to increase treatment options for patients living with rare diseases. Check out these key facts about rare diseases and the state of clinical research progress.
Rare Disease Facts:
More About Rare Diseases:
- Almost 7,000 rare diseases affect < 200,000 people in the United States
- Rare diseases may involve chronic illness, disability, and often premature death
- Rare diseases are complex, and since the majority of these diseases have inadequate or no treatment options, they represent a disproportionate share of health care spending
- Patients with rare diseases are frequently misdiagnosed or are undiagnosed