Advanced Clinical Blog

A clinical research industry blog.

Rare Disease Key Facts

In support of Rare Disease Day, we’re raising awareness about rare diseases and their impact on patients’ lives.

There's a growing need to increase treatment options for patients living with rare diseases. Check out these key facts about rare diseases and the state of clinical research progress.

 

Rare Disease Facts:

Rare Disease Blog Graphic.jpgMore About Rare Diseases:

  • Almost 7,000 rare diseases affect < 200,000 people in the United States
  • Rare diseases may involve chronic illness, disability, and often premature death
  • Rare diseases are complex, and since the majority of these diseases have inadequate or no treatment options, they represent a disproportionate share of health care spending
  • Patients with rare diseases are frequently misdiagnosed or are undiagnosed

You can help raise awareness about rare diseases by attending an event, sharing your personal story, and sharing this article using the buttons above!

(Source: NIH)